DATCH stands for Developmentally-Appropriate Tools for Children with Hemophilia.
DATCH aims to develop effective educational materials for children with hemophilia based on their developmental stages to help them learn more about their disease and treatments, ultimately becoming advocates in their own care. Various members from the hemophilia care team have been a part of the development and consultation process.
Learn with Teddy, who has hemophilia, and his family by following his journey throughout all the DATCH resources.
Please note that many of our resources below have already been developed, but are not yet readily accessible to the general public. Although our resources have already been created, we are still studying them through a research ethics approved study to ensure that they are effective.
If you are a healthcare professional who would like to use these resources or if you have any questions, please email us at DATCH@mcmaster.ca.
My Hemophilia A-B-Cs
In this hemophilia alphabet book, follow along Teddy as he learns his ABCs. In this book, Teddy learns about the clinic, bandages, and how to take good care of himself.
Hemophilia Cartoon Animation Videos
Join Teddy as he explores his hemophilia, goes to the clinic and meets his care team, uses his new sticker calendar, and gets a treat from the treasure box for taking care of himself! There are 4 episodes in this series.
Teddy has a Bruise
Teddy Learns About Hemophilia
Meet Teddy and his sister Zoe! Teddy has a bruise and learns that his bruise is different than Zoe's. Teddy learns about blood and is introduced to the 'helpers' in his blood (called 'factors'). Teddy starts to understand the importance of taking care of his bruise.
Teddy goes to the clinic to check on his bruise. Teddy meets Doctor Daisy and learns that another name for the helpers in his blood is called factors. Teddy learns that he has hemophilia. Doctor Daisy answers a lot of Teddy's questions about hemophilia.
Teddy goes back to the clinic for a routine checkup. Teddy meets his care team at the hemophilia clinic such as Nurse Nate and Physiotherapist Phil. Teddy learns about physical exams and is introduced to his sticker calendar. Physiotherapist Phil also encourages Teddy to continue playing with his friends.
Teddy's Sticker Calendar
Teddy and Zoe go biking in the park. Teddy remembers to wear a helmet while he rides his bike. Now, he can get a care sticker for being safe. Teddy and Dad put some stickers on Teddy's sticker calendar. During Teddy's checkup visit, Teddy brings his sticker calendar. Teddy chooses a firetruck from the treasure box.
My first hemophilia colouring Sheets
This collection of educational and interactive colouring pages aims to familiarize the child with hemophilia. It addresses concepts such as how to improve their health and quality of life and reduce bleeding. Have a little fun learning about living with hemophilia or practice mindfulness with a colouring page that resonates with you!
This is a sticker calendar that children with hemophilia can use to record their care. This encourages children to be involved in their own care.
Bandaid stickers = bruise, cuts and scrapes
Needle stickers = factor treatment
Blood drop sticker = care sticker (when children take care of themselves such as eating healthy and wearing a helmet)
Hemoworld: hemophilia video game
Hemoworld is an action packed adventure for anyone seeking to learn about the inner workings of hemophilia. Join Dr. Daisy as we traverse through the body to learn about the circulatory system, the clotting cascade, safe practices for kids with hemophilia, recommended exercises for those with hemophilia, and many more important lessons. While recommended for kids aged 8-11, anyone can join this motivating, reassuring and most importantly fun adventure!
Ages: 11-17: Menstruation
Know your flow
Know Your Flow is an informational resource for individuals with a bleeding disorder (not limited to hemophilia) who already or will menstruate. This booklet was developed with input from a multidisciplinary group of 27 health care providers. It includes perspectives from pediatric and adult hematology, obstetrics and gynecology, nursing, physiotherapy, social work, child life care, primary care and emergency medicine. Importantly, it was also shaped by the lived experiences and advice shared by 19 girls and women with bleeding disorders and their caregivers from across Canada. The resource covers topics ranging from what a period is to period products to tips and tricks. A French translation and print copies will also be available soon. We will be expanding this booklet globally, across multiple languages and cultures in the upcoming future.
Ages: 11-17: Menstruation
You've got this. Period.
Similar to Know Your Flow, You’ve Got This. Period. is a self-reflection guided informational resource for individuals with a bleeding disorder (not limited to hemophilia) who menstruate or expect to begin menstruation. Topics covered in the booklet include typical menstruation, atypical menstruation, medical management, self-management, support, and empowerment. In addition, there are interactive reflection prompts throughout the booklet. Please note that this resource is not recommendation-oriented and is not a substitute for professional medical care.
Navigating sexual health & Hemophilia
The goal of this resource is to sensitively and meaningfully navigate the potential sexual health-related questions, concerns, and experiences of individuals living with hemophilia and other bleeding disorders. Through both content covered and delivery of information, this resource aims to be inclusive of intersectional identities, considerate of historical and present contexts, and different attitudes toward sex-related topics.