This is a compiled list of existing educational resources not developed by DATCH, which provides support for people with hemophilia, their families and caregivers. The goal is to improve the health and quality of life for people with hemophilia. Resources highlight basic information and the topics of treatment, physical activity, inhibitors, pain, emergency, independence, and travelling. All resources are affiliated with an organization based in Canada. All resources are available online in the format of a downloadable PDF document, book, game, app, video, or PowerPoint. All resources are also free or cost a low fee. This list of resources is not comprehensive. All resources were evaluated on a list of criteria. The criteria evaluated the topics of currency and timeliness, authority, organization affiliations, purpose, quality of the information, representativeness/applicability, ability to obtain/access, and accessibility. It consists of 40 questions. Resources deemed high quality were included in this compiled list.
DISCLAIMER! Resources and information are provided for your general information only. It is not medical advice and is not a substitute for visits with healthcare professionals.